It's a girl!

I am thrilled to announce that our daughter, Lucy Jane, was born on Saturday, March 12th at 6:09pm.  She weighed 7 pounds, 15 ounces and was 20.7 inches long.  She is doing great and we are in heaven.

I will post her birth story when I have some more time, but just wanted to post a quick update and a couple of pictures.  The doctors did not have to do anything for her heart immediately, they will just continue to monitor it for now and she had no blood sugar issues when she was born, so we're thrilled to have such a healthy daughter!

We're enjoying every minute and can't believe she's finally here!

The C-Word

 Written on Feb 23rd...

Cancer.  It’s a scary word, especially when you’re being told you have it at almost 38 weeks pregnant.  That word has been echoing through my head for about 24 hours now, and the fear it instills hasn’t quite lost its bite yet.  Granted, it’s only skin cancer, and is easily treatable, but I wasn’t at all prepared to hear that word so soon in my life.

This all started back in January when I went to my dermatologist for my 6-month mole check up.  I’m very fair skinned, so I am always having spots removed, but none have been cancerous before.  There was one spot that was worrying me, and I pointed it out to my doc at the beginning of my appointment.  She said she wanted to look at it again in a few weeks, and in the meantime we checked with my OBGYN to make sure it would be OK to remove it if that was necessary.  We got the go, and when my dermatologist looked at the spot again, she decided to remove it.  That was last week.  I went on my way, forgetting about it really with everything else we have going on, and didn’t think about it much.

Then yesterday, I received a call from my dermatologist who told me that I have a malignant melanoma. I was shocked.  I gasped to swallow the sobs that were building up and I tried to process what she was telling me.  The bad news is that melanoma is the “bad” skin cancer that spreads rapidly, but the good news, or I should say the GREAT news, is that I get checked every 6 months, so mine was caught early enough that it hasn’t spread yet, and it will be easily taken care of with a minor procedure.

I just can’t help but think what would have happened if I skipped that appointment like I wanted to.  In the short 6 months since my last appointment, this cancer grew fairly quickly, so I can’t imagine if I had waited to go back until the next 6 month cycle.  Would I have been diagnosed with a later stage cancer and told I only had a year or so to live with my brand new baby and husband?  I just can’t comprehend that scenario, and I’m now a little paranoid that there could be other spots on me that we’ve missed.  It also feels strange to be walking around knowing there is cancer in my body.  I just want them to cut it out as soon as possible, which hopefully they’ll be doing next week.

Luckily, this won’t impact the baby at all.  The only real concern right now is that if I go into labor right after they do the surgery, I could rip out my stitches, but that’s not the end of the world.  So, for now, we’re just hoping the baby stays put long enough to get this taken care of before he or she arrives.  I’m probably the only woman who is 37.5 weeks pregnant and hoping the baby stays put!

I sincerely hope this is the last bit of excitement we have until the baby gets here.  I know things could be worse, but I’ve had enough of dealing with medical surprises for now—no matter how serious.

Update: I had the surgery to remove the spot this past Friday and still no baby so I’m so glad this is behind me!  Stitches will come out on Thursday (depending on when baby comes since I'm due THIS Sunday!!).  Now, I’m officially just sitting here waiting for Baby B to arrive!  Will update on the pregnancy soon, but overall, besides this little blip, I’m feeling wonderful.

home stretch!

Well, it’s been a few weeks since a real update on my pregnancy – I can’t believe how fast the time is going. Since the past few weeks have been hectic with my dad’s bypass surgery (a whole other topic, but he’s doing OK), a very hectic work schedule, my birthday, and being sick, I haven’ had much time to stop and update the blog.

So, here’s where we are. I just had my 36 week check up and all is looking just fine and dandy. I’m not showing any signs of delivering early, so my doc thinks she may have to induce me on March 15th, the latest they’ll let me go. But, she also said things can change between now and then and that I still could go naturally, which is what I’m hoping for. The nurse from my childbirth class said to do lots of squatting and walking to help get things going in the right direction, so I need to do more of that!

My blood sugar has been manageable. Very few lows and the high spikes are getting easier to anticipate and control. Of course, a lot of that is because I just take a ridiculous amount of insulin now, but whatever it takes is fine with me. I’m making my CDE crazy because I am not really logging very much. I am still testing a ton, but things have just been way too hectic to log everything, so she’s getting frustrated with me, but only because she can’t help me very much if she has nothing to go on. Luckily, my numbers are pretty good, so she’s not too concerned.

My blood pressure and weight continue to be really good, so I don’t think I’ll have to deal at all with preeclampsia like I worried I might a few months back. I am extremely relieved about this. I’ve actually only gained about 12 pounds total so far, but a lot of that is because I was so sick in the beginning and since I was somewhat overweight to begin with, they didn’t want/need me to gain a lot. It’s all right in my belly too, so I’m definitely looking the part of very pregnant woman!

My only real complaint these days is fairly strong pain when I walk, which I’m told is round ligament pain. I took a little spill in my office last week, and my doctor thinks I aggravated the ligaments which is making walking pretty painful. She suggested I get a maternity belt, so I’ll add one more hideous pregnancy accessory to the wardrobe for the next few weeks, but hopefully it will help. If that’s the only thing wrong at this point, I’ll take it!

I’m still sleeping well and hope that continues! Can’t believe we’re in the home stretch now!

Sweet Child of Mine,

I can’t believe how close we’re getting to your arrival (only 5.5 more weeks)! Your dad and I are so excited to meet you, we can hardly stand it. We’re getting our apartment ready for you – we have so many friends and family who can’t wait to welcome you to the world who have all helped us to get everything we need for your first few months in the world. You have a crib, a changing table, a stroller, toys, books, activities and lots of clothes too, all just waiting for you. But, most importantly, you have so many people who love you already and who can’t wait to meet you. Know that you are lucky to have such a strong and loving community of people who are all eagerly awaiting your arrival, and never forget that these people are there for you not only now as you enter the world, but also as you grow and may need people besides just your parents to turn to.
While I would be lying if I didn’t say that there were times over the past eight months or so that were terrifying, we’ve also had so much fun with you as you’ve grown—from telling all our loved ones about you, to hearing your heartbeat for the first time, to feeling you move to trying to guess whether you’ll be a little girl or little boy.

There are times that your dad and I can hardly believe that we’re going to be your parents—that we’ll be responsible for making sure you grow up to be healthy and strong, happy, and well taken care of. It’s hard to fathom that we’ll be in charge of shaping your future, trying to balance who we want you to become with who you already are. Just know, sweet child of mine, that mostly we just want you to be you, because whoever you are, we already love you. You already have a personality, a tendency towards the exciting and dramatic. You burst into our lives so quickly, and have been keeping us on our toes ever since. I fully expect that to continue throughout your life, and we can’t wait to see what you have in store for us in the years to come.

I know the first few days and weeks of your life will be a little scary at times for both of us, but as I asked you to be when I first found out about you, I’m going to ask you again to be strong. I already know you’re a fighter, so I know you’ll be tough as our doctors work hard to make sure your heart is working after you’re born. Like Mommy, you’ll have to learn to be a good patient because you’ll be going to lots of doctors, but I hope you’ll see that they are there to help and to make sure you can grow up to be strong and playful. I hope you know that even if something is wrong with your little heart, the doctors know exactly how to fix it, and they’ll take such good care of you! And, your dad and I will be there every step of the way to so you’ll never go through any of this alone.

You’ve already been such a joy in my life. Even during the scary times, just rubbing my belly and knowing that you’re in there can bring me absolute peace. While we can’t wait to meet you, take your time in there and grow to be as strong as you can.  I can't wait to see your little face, and to hold your little hands!

With all my love,
Mommy

PS - Don’t worry if your dad and I are crying when you first see us, they will be the happiest tears of our lives. :)

General update - feeling good!

Well, last week was an eventful week with doctors, and this week will be too, but first I wanted to give an overall update on how I’m feeling at week 33! In short, I feel great. I’m not overly tired or sore or miserable in many of the ways I’ve heard other women can be at this point in their pregnancies. I am a bit uncomfortable at times as my belly gets bigger, and Baby B is starting to give me some good hard kicks that make me jump, but overall, I’m thankful that I’m feeling really good.

My appointments last week went like this—first the fetal cardiologist, then the CDE, then my OB. Here’s a quick summary of them all:

Fetal cardiologist:
Baby B’s heart looked about the same as it did last time. She said the bigger the baby gets, the harder it is actually to see on the echo cardiogram, so she didn’t get a great look, but felt confident that the valve in question isn’t any worse than it was two weeks ago. She said she’d be surprised if the baby needed to have the balloon procedure done in the hospital in the days after delivery and that it is more likely to be done in the months after delivery, if at all. I took this all as good news!

CDE:
My CDE took my A1C and also went over my eating and pump rates. My A1C was 6.0, which she was happy about because they’ve wanted me a little higher than I was before since I was going low a lot. I wasn’t thrilled with this (I was getting used to seeing those 5’s), but if they are happy, I guess I am too. I’m taking A LOT more insulin now than I was in the beginning of my pregnancy and while this is to be expected, my CDE suggested trying to eat less carb-heavy foods so I won’t require such mammoth doses of insulin—so, goodbye bagels and potatoes, don’t worry, I’ll be back soon!

OB:
Everything went great at the OB. I had an US and they checked all the usual suspects—the baby’s movement, position (head down still!), fluids, etc. Everything looked good and I was happy to have an uneventful appointment. Next time we’ll discuss the details of my delivery plans, but my OB did say that she has no problem with me leaving my pump on during delivery, which I was very happy about.

So, all in all, everything is going well, despite the baby’s little heart issue. In terms of the bigger heart issue (my dad’s heart), we found out last week that he will need bypass surgery, which sounded very scary at first, but is actually pretty routine. I’m just hoping they can do it soon so I can be there. If they do it too late, I won’t be able to travel to Philly to be there, so we’ll just have to see.

Tomorrow we’re off to the children’s hospital where I’ll deliver to meet with the folks in the cath lab who would perform the balloon procedure if it becomes necessary and we’ll also meet with a genetic counselor. I’m still not really sure what the genetic counselor has to offer at this point, but I go where I’m told these days. They’ll also take us by the NICU just so we can see it in case Baby B ends up there for whatever reason. Finally, I’ll have my weekly US so they can peek in on the baby to make sure all is OK in there.

While this all seems like a lot and maybe overkill, I’m so thankful that I’m part of a medical team and system that is so prepared and willing to spend a lot of time with us in preparation of all the what ifs.

So, hopefully I’ll keep feeling well, and we’ll sail on through this week without any major issues popping up!

What a week

Well, I’ve had some time to digest the news about Baby B’s heart issue, and I’m feeling much better about it this week. I know that we have great doctors, and that even if we do need a procedure to fix the problem, it’s very routine and simple. I still worry that something else could pop up now, either related or unrelated, but I don’t feel the uncontrollable need to cry or inability to shake the worry anymore. It’s amazing what a little time can do to make you step back and get some clarity.

As far as my diabetes has been, it’s been a roller coaster. I literally sometimes will just give myself what seem like totally random and unwarranted amounts of insulin just to keep myself in a good range. While this has been working the past week or so, I need to get better about logging again so I can reset my basal rates and insulin to carb ratios so that I’m not just taking shots in the dark about how much insulin to give myself.

This coming week is a big week for me and my growing family. We go back this week for another fetal echocardiogram where we hope to get a little more information from our cardiologist and will have a chance to get some of the questions we’ve come up with over the past two weeks answered. I also go to see my CDE, who will do an A1C, and I’m very nervous about that because I feel like I’ve been high a lot more than I like to be over the past couple of weeks until I started randomly doling out insulin. I also go back to my OB for a regular check up and ultrasound, so there is a lot on my plate this week—not to mention the fact that I’m still attempting to at least pretend that I’m being somewhat productive at my full time job.

On top of all that, a new stress has been added to the mix. My dad, who has Type 2 diabetes, has recently started to suffer from various complications mainly due to the fact that he has ignored his diabetes for the last 15 years or so. I wrote about this recently on the ACT1 blog. Most recently and very ironically, we’ve learned that my dad now also has an issue with his heart. He will be going in tomorrow hopefully for a simple procedure that is similar to the one that Baby B may need if necessary, but if they get in there and the damage is too bad, they will need to do bypass surgery at a later date.

So, I’m trying to stay as composed as I can through all of this, both for my own sake, and the baby’s. I know stress isn’t good for the baby, and certainly not good for my blood sugar either, so I’ve been working hard to just be rational and as calm as possible about all of this. I also know there isn’t a blessed thing I can do to control any of this, so at this point, I feel like I’m just a player in one big waiting game.

I hope my next post will be full of updates of good news and bright outlooks for Baby B and for my dad. In the meantime, I’ll just keep working to control the only thing I can even try to control, and that is my diabetes.

Broken Hearted

I’ve learned in the past few days what a helpless feeling it is to know that no matter how much you want to, you can’t always protect your children from bad things that may happen.  I’ve worked so hard on my blood sugar leading up to and during my pregnancy, but in the daily flow of testing, taking insulin and counting carbs, I got lulled into thinking that diabetes was the only thing that could negatively affect my child.  But, when I went for my second echo cardiogram late last week, seemingly out of no where and apparently unrelated to my diabetes, they found an abnormality with the baby’s heart—something called Pulmonary Valve Stenosis.  Basically, one of the valves in the baby’s heart is not working properly, keeping the blood from flowing the way it should.

When the cardiologist first explained what was going on, I felt waves of panic, which I tried to fight with reason.  The words that the doctor was using—valve, stenosis, valvuloplasty—confused and crippled me.  I tried to get my thoughts straight, knowing that I needed to ask questions that would help me make sense of the situation. 

It sounded so serious when the doctor was first telling me what was going on, but as I kept asking her to stop using medical terms and to explain what this meant in layman’s terms, I came to understand that luckily, this particular abnormality is fairly easy to fix should a fix be needed. They may need to do a relatively minor procedure called a percutaneous balloon pulmonary dilation, or valvuloplasty, on the baby sometime after delivery to fix the valve and that should be it.  It is also possible that nothing will need to be done, and the baby may just need to be monitored by a cardiologist throughout the early years of its life.  In terms of heart problems, this is one of the more mild things that can go wrong, and I know I should be thankful for that.  But, ever since I found out, I’ve felt an overwhelming sense of helplessness and fear.

My shower was this weekend (more to come on that), and while it was so nice to spend time with friends and family and it was a great day, as people kept asking how I was feeling and how the pregnancy was going, it felt like I was getting punched over and over.  I smiled and said that everything was great, not wanting to get into it, but my head was spinning with thoughts of everything that could go wrong from here and I fought several times to hold back tears.  I’m not sure why, but even after talking with all of my doctors and hearing how easy this situation is to handle, I am so upset over this whole thing.  Every time I feel the baby move, I worry that it is straining it’s heart, or every time I get stressed, I worry that I’m putting stress on the baby too.  I’m not sure if it’s the pregnancy hormones or what, but I hope in the coming days I can snap out of this fog. 

So here we sit, both my baby and I, with broken hearts.  I just hope that as I work on healing mine, the baby’s will begin to heal as well.